When Dennis was diagnosed with Parkinson's four years ago, we searched to find helpful sites, with answers, on the web and from his doctor. Of course, Michael J. Fox and Mohammed Ali's sites came up as we searched the web. We talked to doctors, nurses, friends and social workers and found we were doing everything that we could. We could treat the symptoms of Parkinson's, but we could not beat the disease. He would live a long time, but he would always be inflicted with this disease.
Now, we are searching for information on Shy-Drager, Multiple System Atrophy and Parkinson's Plus. There is less information, more bewildering than before, and none of it brings any sense of relief. The Internet and the doctors all say the same thing - treat the symptoms and the prognosis is not good.
Actually, I guess, the answer is right in front of us. There is no cure. We can treat the symptoms, a bit, but we cannot change the disease/syndrome. Perhaps we should stop trying to find answers that simply do not exist, and focus on living our lives to the fullest.
Until Tomorrow,
Ann and Dennis
Living with Multiple System Atrophy, Shy-Drager and Parkinson's Plus
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