I have been intending to add some links to my blog that may be helpful to others, but I have been a bit busy and forgetful lately. I will get around to it when it gets cold and we get home from our next vacation. For now, here are two links that I think you will all find interesting.
The first is simply the best idea ever - World MSA Day. I found out about too late to do anything this year, but next year I hope to plan something for awareness in my area. Perhaps you will wish to do the same. Her is the link.
http://www.world-msa-day.org/World-MSA-Day/Welcome.html.html
The next one I found through the Shy Drager support group on Yahoo. I know that all of us have had difficulty talking about MSA/Shy-Drager with others, even our doctors. This dude, Paul, made a pamphlet explaining the disease and it is wonderful. It's written in simple language and it's very well done.
http://tinyurl.com/PDCANADA-MSA
I hope that these two links will get you thinking today.
I received an update from the yahoo groups today, and there was a link for a clinical study that those of you in earlier stages of MSA may be interested in pursuing. Dennis does not qualify because of his severe speech and swallowing impairment, but I hope some one out there will qualify.
http://www.clinicaltrials.gov/ct2/show/NCT00977665?term=rasagiline+msa&rank
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