Showing posts with label funeral. Show all posts
Showing posts with label funeral. Show all posts

Friday, February 19, 2010

An MSA Death

Another memorial service today. I will, however, only attend the visitation, as I have never met the man who died. I only know his wife through a couple of phone calls and emails.

But, he had MSA, and died from complications of the disease.

Janet found me through my website and asked around at the Parkinson's clinic if anyone knew me. In January, we both gave Joan and Marjorie permission to share our information, and Janet and I talked a little while later. We chatted about life as a care-giver, the uniqueness of MSA, and where we all were headed in the future.

Then, when Dennis checked out the communication device, we were told that Patrick, Janet's husband, was receiving one too. Patrick and Dennis also were in for fittings for electric wheel chairs about the same time. We seemed destined to meet.

In my mind, although it never came out of my mouth, we would get together as couples after both guys had received the new Dynavox that was being built for each of them. I thought about how nice it might be for both guys to "chat" comfortably, and hopefully share quite a few laughs. Sadly, it is now too late.

Tonight, please, hold Patrick and Janet in your hearts. In fact, let's all hold each other in our hearts.

Until later,
Ann and Dennis

Thursday, November 26, 2009

Raquel

I was very wise on this Thanksgiving morning! I had Raquel come in and get Dennis ready, so that I could get dinner ready and the house picked up. It turned out to be a very good choice.

Neither Dennis or I got much sleep last night. As I said the other day, Dennis gets needy when I am taking care of something else, and I get overwhelmed. I wish I could be there for him, and him alone, 24/7, but it isn't in the cards. And for so many reasons.

I would kill him after about 2 weeks, is at the top of the list.
Under that heading comes financial needs.
Then there is the needing to be able to have a discussion with someone that I can understand.
Of course, our loving relationship suffering because our roles would become to different.

I could go on, but why?

Anyways, I am glad that Raquel could come in and get him showered, dressed and ready for the day. She also got his wheel chair sparkling for tomorrow and the big day ahead.

She will come in tomorrow, also, to get him showered and into his suit. This will give me the chance to be funeral ready before the 2 hour drive to Eau Claire.

Sometimes I feel so very wise.

Until later,
Ann and Dennis