A journal of living with Multiple System Atrophy. How we, a 58 year old woman and a 62 year old man, laugh, cry and love our way through Dennis' latest symptoms and newest diagnosis of MSA.
Saturday, January 8, 2011
Dennis Died
I don't know what else to say right now. He died of complications due to his MSA.
Ann,I am so sorry for your loss. I read back a couple of years on your blog and it seems like my dad is following that same road. Dennis is now in a better place, free from that God awful disease, MSA.
Oh no! Here I was going to offer to help and give you moms old things.
So so sorry!! Relate so much. He had such a special glow coming through his eyes. He reminded me so much of mom.
Now your days of turning, suctioning, adjusting, getting wheelchair ready, finding ways for him to experience bits of life are over.
Having to make all the death related decisions come now and your attention goes to the loss of who he was through the years and who he became through MSA. In a couple of months is when you will really miss him, that is where I am now. You are strongly in my thoughts.
Thank you. I will try and tell the story in a day or two. It was a fairly peaceful ending to a very strong-willed, brilliant and loving man who lived with grace with a horrid disease.
Dennis, I know you are already shining your light down on me. I love you, my Sunbear.
Ann, I am so sorry for the loss of Dennis. I have read your blog off and on since my sister was diagnosed with MSA-C. Thank you for sharing your experiences. Please accept our sincerest condolences. I will be praying for you in the coming days. Deanna
I have written you a small book..but my comments do not appear. Weird. I can+t get it all down again..no matter.
I am with you and Dennis..eventho he has moved on and I will come, if you need me. O God, how pathetic..but computers should be burned and thrown away, I see.
He is with you..and he has set you free..as he has wanted to for a long time now..take him up on his offer..and take up up your fight for this terrible disease that he suffered from. Annie, you WILL go on..for Dennis..for yourself. I dare not write more..if you never get any of it.
I am so sorry to have read that Dennis passed away. I grieve with you over the loss of your most beloved. You and Dennis have shared your journey with so many and I feel so privileged to have met both of you. Dennis singing "Lola, Lo-lo-lo-Lola" is so fondly remembered, as well as his courage in dealing with the dreadful MSA. With my deepest sympathy comes gratitude in the same measure. It is extremely significant to me that by your example, one is reminded to confront love as a priority...under whatever circumstances that is tried and tested. It is the richest gift you and Dennis were blessed with and have in turn given to each other.
Today, I light a candle in Church for him and for you. Both of you will be remembered at Mass.
Dear Ann, I am so so sorry to hear of Dennis' passing. You both have been my blogger friends and have supported me with my MSA, too. I am thinking of you and praying for you. You are dear to all who read your posts. You have been a blessing to me, as well. Take care, Dan B (I Will Go On: Living with a Movement Disorder)
I only hope you can somehow feel the love and hugs and support coming your way from your 'online' friends. We all wish we could be there to share a hug with a tremendous lady.
Ann, this news has come as a shock and hit me with such a thud when i read it, followed by tears. I have been reading since summer as i searched the internet for MSA infomation as my dad is suffering from it. I have found it so helpful and supportive. I hope you are ok you are such a strong woman. X
I came across your blog a couple of years ago, and even though we have never met and never will, I want to thank you and Dennis for sharing --I so appreciated your candor and humor. I am so sorry for your loss and my thoughts are with you. Hope you will continue to write.
Thank you one and all. I feel your love and prayers and as Dan would say - I will go on. And I will go on stronger than before, because I have had all these wonderful, loving and adventurous years with Dennis.
Dear Ann, My sincere condolences on your loss. If you are still reading the shydrager site on Yahoo groups there are many condolences for you there as well. You and Dennis have touched so many who are reaching out to support you now.
Ann, I'm so sorry for your loss. I started to read your blog last week and shared it with my mother. My Dad has been suffering from MSA for the past 9 years. He passed away on 1/9/11. Our prayers are with you and your family.
I am so sorry for your loss. I just lost my mother to MSA November 21st, the Sunday before Thanksgiving. I can't imagine ever feeling better. I thought I'd feel more relief knowing she's not suffering anymore but I just miss her terribly. Oh what a cruel disease.
Ann, my condolences to you. Dennis's death was not a happy one. It sounds as if he went through near hell before the end. I discovered your blog this afternoon. I wish I had found your blog earlier as I am a sufferer of Shy-Drager-Syndrome - Multiple System Atrophy. I sense that we could have all made invaluable comments to each other. LOve Gerald
25 comments:
Ann, I am so sorry this happened so soon. Sending hugs to you - wish I could be there to hug you in person!
Ann,I am so sorry for your loss. I read back a couple of years on your blog and it seems like my dad is following that same road. Dennis is now in a better place, free from that God awful disease, MSA.
With aching heart and love, I keep you in prayer and mind.
Oh no! Here I was going to offer to help and give you moms old things.
So so sorry!! Relate so much. He had such a special glow coming through his eyes. He reminded me so much of mom.
Now your days of turning, suctioning, adjusting, getting wheelchair ready, finding ways for him to experience bits of life are over.
Having to make all the death related decisions come now and your attention goes to the loss of who he was through the years and who he became through MSA. In a couple of months is when you will really miss him, that is where I am now. You are strongly in my thoughts.
I'm so sorry to hear of your loss. Please know that I am praying for you!
I'm very sorry for your loss.
My sincerest condolences
Thank you. I will try and tell the story in a day or two. It was a fairly peaceful ending to a very strong-willed, brilliant and loving man who lived with grace with a horrid disease.
Dennis, I know you are already shining your light down on me. I love you, my Sunbear.
So sorry for your loss. My mother died in July from this terrible disease. Peace to you and your family.
Ann, I am so sorry for the loss of Dennis. I have read your blog off and on since my sister was diagnosed with MSA-C. Thank you for sharing your experiences. Please accept our sincerest condolences. I will be praying for you in the coming days.
Deanna
I have written you a small book..but my comments do not appear. Weird. I can+t get it all down again..no matter.
I am with you and Dennis..eventho he has moved on and I will come, if you need me. O God, how pathetic..but computers should be burned and thrown away, I see.
He is with you..and he has set you free..as he has wanted to for a long time now..take him up on his offer..and take up up your fight for this terrible disease that he suffered from. Annie, you WILL go on..for Dennis..for yourself. I dare not write more..if you never get any of it.
Annie. Annie..if you need me..I will come..
Love to you and Dennis..always
Iva
Dearest Ann
I am so sorry to have read that Dennis passed away. I grieve with you over the loss of your most beloved. You and Dennis have shared your journey with so many and I feel so privileged to have met both of you. Dennis singing "Lola, Lo-lo-lo-Lola" is so fondly remembered, as well as his courage in dealing with the dreadful MSA. With my deepest sympathy comes gratitude in the same measure. It is extremely significant to me that by your example, one is reminded to confront love as a priority...under whatever circumstances that is tried and tested. It is the richest gift you and Dennis were blessed with and have in turn given to each other.
Today, I light a candle in Church for him and for you. Both of you will be remembered at Mass.
God bless
Lola
Oh Ann, I am so sorry. I have no words. You two were an amazing couple, right to the end.
Tracy
Dear Ann, I am so so sorry to hear of Dennis' passing. You both have been my blogger friends and have supported me with my MSA, too. I am thinking of you and praying for you. You are dear to all who read your posts. You have been a blessing to me, as well.
Take care,
Dan B (I Will Go On: Living with a Movement Disorder)
I only hope you can somehow feel the love and hugs and support coming your way from your 'online' friends. We all wish we could be there to share a hug with a tremendous lady.
Oh my God. I gasped when I read this. You were such a wonderful couple and my heart breaks for you. Rest in Peace, sweet Dennis. God bless you, Annie.
Ann, this news has come as a shock and hit me with such a thud when i read it, followed by tears. I have been reading since summer as i searched the internet for MSA infomation as my dad is suffering from it. I have found it so helpful and supportive. I hope you are ok you are such a strong woman. X
so sorry, I will keep you in my prayers. My son is 47 and has msa-c .
I came across your blog a couple of years ago, and even though we have never met and never will, I want to thank you and Dennis for sharing --I so appreciated your candor and humor. I am so sorry for your loss and my thoughts are with you. Hope you will continue to write.
Thank you one and all. I feel your love and prayers and as Dan would say - I will go on. And I will go on stronger than before, because I have had all these wonderful, loving and adventurous years with Dennis.
Again, thank you for reading my blog.
Dear Ann, My sincere condolences on your loss. If you are still reading the shydrager site on Yahoo groups there are many condolences for you there as well. You and Dennis have touched so many who are reaching out to support you now.
Hugs,
Pam
Ann,
I'm so sorry for your loss. I started to read your blog last week and shared it with my mother. My Dad has been suffering from MSA for the past 9 years. He passed away on 1/9/11. Our prayers are with you and your family.
I am so sorry for your loss. I just lost my mother to MSA November 21st, the Sunday before Thanksgiving. I can't imagine ever feeling better. I thought I'd feel more relief knowing she's not suffering anymore but I just miss her terribly. Oh what a cruel disease.
Ann, my condolences to you. Dennis's death was not a happy one. It sounds as if he went through near hell before the end. I discovered your blog this afternoon. I wish I had found your blog earlier as I am a sufferer of Shy-Drager-Syndrome - Multiple System Atrophy. I sense that we could have all made invaluable comments to each other.
LOve
Gerald
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