It was a crazy day at work with 12 substitutes and a whole lot of restless students. It was the second day of over 90 degree temps outside, and the barometric pressure was in the middle of a huge change.
About an hour before the end of the day, Raquel called. Dennis had refused to get out of bed all day. She had tried at 9 AM to rouse him, again at 11 AM and once more at 1 PM. He finally said he would sit up and eat ice cream before she left at 2:30.
He decided to get up and sit in his chair when I came home. He said he wasn't feeling well, but wasn't able to put his finger on what was really wrong. He was dizzy. He was tired. He was depressed. But he couldn't say any one specific thing.
I think he is feeling the same thing all the kids and teachers were feeling today. Antsy to get up and out and have fun, yet knowing it just isn't the right time, yet.
Hang in there, Dennis. I will be home to entertain you very soon. We will fly to Ireland for a couple of weeks, and practice drinking Guinness. You will rise to the occasion and have lots of fun. Just be a little patient, my dear.
Until later,
Ann and Dennis
A journal of living with Multiple System Atrophy. How we, a 58 year old woman and a 62 year old man, laugh, cry and love our way through Dennis' latest symptoms and newest diagnosis of MSA.
Showing posts with label tired. Show all posts
Showing posts with label tired. Show all posts
Wednesday, May 20, 2009
Wednesday, April 15, 2009
Tired
Dennis gets tired too easily. Well, maybe it's just too often.
Last night I came home from work, and he had just finished a session with the in-home PT, Phoebe. He was sitting in front of our new, big screen, LCD TV and practicing tennis on the Wii. He was feeling feisty and challenged me to a game of bowling. Neither one of us played a good game, but he challenged me to a second game. After the second frame, he was done.
I had picked up stuffed chops for dinner, and cooked them while we played. I chopped one up nicely for him, and halfway through dinner, Dennis wanted to go to bed.
Tonight he was in his office when I came home. The phone was ringing as I was walking up the steps, but he wasn't able to pick up the call.
We didn't spend any time together today. He was just too tired. Too tired to talk, too tired to eat, to tired to do much of anything.
Vacations are our real measure of how we are doing. Last summer, while in Paris, we took off about 2 days a week, due to tiredness. This fall, in London, it was closer to 3 days a week. But, giving that I was sick for half of the trip, it seemed a bit skewed to be considered real data. During this years spring break, we were at an every other day rhythm of fun and rest. But we were at home, and it was more about relaxing than anything else. We have slowed down, but both of us rally for real vacations.
We have been considering how long to take off for vacation this summer. How long can we rally? How many days will be down days? How much do we really want to see?
It's a question that we need to answer soon.
Last night I came home from work, and he had just finished a session with the in-home PT, Phoebe. He was sitting in front of our new, big screen, LCD TV and practicing tennis on the Wii. He was feeling feisty and challenged me to a game of bowling. Neither one of us played a good game, but he challenged me to a second game. After the second frame, he was done.
I had picked up stuffed chops for dinner, and cooked them while we played. I chopped one up nicely for him, and halfway through dinner, Dennis wanted to go to bed.
Tonight he was in his office when I came home. The phone was ringing as I was walking up the steps, but he wasn't able to pick up the call.
We didn't spend any time together today. He was just too tired. Too tired to talk, too tired to eat, to tired to do much of anything.
Vacations are our real measure of how we are doing. Last summer, while in Paris, we took off about 2 days a week, due to tiredness. This fall, in London, it was closer to 3 days a week. But, giving that I was sick for half of the trip, it seemed a bit skewed to be considered real data. During this years spring break, we were at an every other day rhythm of fun and rest. But we were at home, and it was more about relaxing than anything else. We have slowed down, but both of us rally for real vacations.
We have been considering how long to take off for vacation this summer. How long can we rally? How many days will be down days? How much do we really want to see?
It's a question that we need to answer soon.
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