We leave, tonight, after work, for Rochester and the Mayo Clinic. I checked out the review for the hotel we are booked into, and they are B-A-D! Yes, I know, we are there for the study, not a vacation. However, as long as we are not at home, isn't it normal to expect great things?
We are both a bit anxious. I love that word, anxious. It suggests both good sensations and negative emotions. That is where we are right now. I am not sure how I feel about the consequences of participating in this study. I know that any information they collect will benefit someone, sometime, somewhere. And that is fantastic. What I don't know is how much it will help Dennis. And that is what I sincerely care about right now.
I anticipate, at the very least, some good advice about how to live a good existence for as long as possible. I would love to find out about a remedy, and I will hold on to that, but it is not in my expectations.
I believe Dennis hopes to know more about his life expectancy and his quality of life. I imagine he would also like the best advice about how to handle his symptoms. And I am positive that he would as well like to hear about a cure.
Until Tomorrow,
Ann and Dennis
Living with Shy-Drager, Multiple System Atrophy and Hope